Tuesday, June 2, 2009

Cancer Registry - Useful Information

As we look at ways that a PHGrid infrastructure could augment cancer registry activities - here are some very useful links:

NPCR-Advancing E-cancer Reporting and Registry Operations (AERRO) (previously MERP):
www.cdc.gov/cancer/npcr/informatics/merp. This site has updated Registry diagrams and use case documents that describe the cancer registration business.

North American Association of Central Cancer Registries (NAACCR) (umbrella organization to coordinate standards across the cancer registry community) http://www.naaccr.org/

Electronic Pathology Reporting standard developed by NAACCR that uses the HL7 2.3.1 standard (working on update to HL7 2.5.1) and HL7 Messaging WorkBench to validate the message content: http://www.naaccr.org/index.asp?Col_SectionKey=7&Col_ContentID=501

NAACCR transmission format that is used to transmit data from the hospital cancer registry and from the central cancer registry (state) to the national agencies can be found at: http://www.naaccr.org/index.asp?Col_SectionKey=7&Col_ContentID=133. On page 58 of this document is a table that lists all of the data elements with a cross mapping of the agency that requires collection.

You can find more information about all of the Registry Plus software tools at http://www.cdc.gov/cancer/npcr/tools/registryplus/. A link to additional information on Link Plus can be found at the same URL.

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